Supporting Family Caregiving Via the Federal Waiver

Published On: April 17th, 2003Categories: Archived Advocacy

(This policy synthesis is derived from Supporting Informal Caregiving, a chapter in Understanding Medicaid Home and Community Services: A Primer, produced by the U.S. Department of Health and Human Services, October 2000)

This synthesis is intended to give all stakeholders information on how the Home and Community Based Services Waiver (Community Care Waiver) can be used to support family caregiving.

In New Jersey, 40% of individuals served by the Division of Developmental Disabilities (DDD) are under age 22 and living at home, with the expectation that by the end of the decade that 50% of individuals served will be under age 22.

Despite this fact, less than 7% of funding in DDD (approximately $21-$24 million) is spent on family support services. These funds are all state money, although the federal government allows some family support services to be part of the Community Care Waiver and receive federal matching funds for most services.

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